619-719-5935
Brain Health Registry
Speed up the discovery of treatments for Alzheimer’s and dementia.
The Ultimate Gift: Brain Donation
The Importance of Brain Donation in Research
The brain is arguably one of the most complex organs in the human body. Because of this, there are still many questions about how different factors can affect the development of brain disease. Scientists all over the world are working to expand our knowledge about different neurological diseases and disorders. While significant progress has been made, researchers continue to need help to fully understand brain disease and to ultimately discover effective treatments and preventative interventions.
One thing that explains the delayed progress in the field of brain research is the lack of available brain tissue. Although there are non-invasive methods that allow scientists to study the living brain, in many cases, the acquisition of brain tissue is necessary for scientists to carry out certain research. Brain donation helps scientists make advancements that could potentially result in highly impactful discoveries.
The Ultimate Gift
For some, the decision to donate their brain to science is too difficult or painful to think about. However, others see donating their organs or tissue after they die as a way of gaining something positive from their illness. There is a sense of pride accompanied with contributing to medical research and potentially changing the lives of others affected with similar neurological illnesses or conditions. Even for those whose health is not afflicted by brain disease, there can be great reward in donating to science that may benefit the next generation.
Brain Donation Opportunities & Resources
There are many areas of neuroscience research that rely on brain donation including Alzheimer’s disease, Parkinson’s disease, PTSD, Depression, Multiple Sclerosis, dementia, and many more. Visit the Brain Health Registry website to learn about brain banks that collect biological materials from people with, and without, a specific disease or condition.
At the Brain Health Registry, we want to convey the importance of participating in research in all stages of life. We hope you’ll consider brain donation, as it can be an opportunity to take part in research that may one day save lives.
What Our Community Says
Hear from our members about the impact of the San Diego Dementia Consortium.
“The San Diego Dementia Consortium’s strength is rooted in its diverse and comprehensive membership, which unites physicians, nurses, assisted living professionals, home care leadership, and community advocates. Addressing the complexity of dementia care fundamentally requires this broad collaboration—from families and communities to clinical and professional leadership—to elevate the concerns of those living with dementia and to standardize expectations for quality, coordinated care.
The Consortium actively fosters this synergy through its ongoing education series, which delivers cutting-edge knowledge about dementia research, highlights vital community resources, and introduces members to a wide range of essential services. Critically, the SDDC develops joint educational resources with a dual focus: informing clinical professionals about the full spectrum of community-based senior care options available, and similarly educating senior care professionals on the latest clinical information and community support strategies for dementia management.”
Jessica Studarus
Independent Health Insurance Broker“I’m glad to be a member of the Dementia Consortium because of its strong commitment to public education and its willingness to partner with like-minded groups to expand impact. Just as important, the Consortium stays focused on its mission, even when there are many competing priorities.
I’m proud to support that kind of clarity and collaboration.”
Joe Casciani, PhD
Founder, Living to 100 Club“The San Diego Dementia Consortium is an incredible resource for everyone, which is why I’m a member. It helped me a ton when both of my wife’s parents were struggling with dementia. It has also reinforced for me the importance of healthy habits—regular vigorous exercise, good sleep, and a clean diet with very few to no processed foods—and just how far these can go in preventing dementia for me, my loved ones, and hopefully, everyone I touch.”
Todd Benton
Owner, BentonWebs“The SDDC has been an amazing organization to work with. Over the years, I have learned so much, which helps me be a better resource for clients, friends, and family. I love the many perspectives presented about the variety of treatments and support modalities available today. I will continue to be involved, hopefully for many years to come.”
Laura Barish
Former owner, caregiving company“For anyone interested in strengthening dementia education, collaboration, and resources in San Diego, involvement with the Consortium is a practical and meaningful way to contribute.”
April Kohnen
Owner/Director, Griswold North SDJoin Us in Making a Difference
Together, we can improve the quality of life for seniors with cognitive
issues in San Diego County.
Phone
619-719-5935Mailing Address
Rancho Santa Fe, CA 92067